Patient and public involvement in research

Patient and Public Involvement (PPI) is defined by INVOLVE as “doing research ‘with’ or ‘by’ people who use services rather than ‘to’, ‘about’ or ‘for’ them”. Activities might include patients or members of the public being involved in deciding research priorities, helping to design a study or reviewing patient-facing documents. More information about how patients and members of the public can be involved in research can be found here.

We recommend that researchers involve patients and/or members of the public throughout their research project, from the initial concept to disseminating results.

Our Patient and Public Involvement and Engagement (PPIE) Team have access to a number of patients, carers and members of the public who have expressed an interested in being involved in PPI at UHCW. We also hold a quarterly Patient and Public Research Advisory Group meeting where researchers can present their project to the members of the group, who are either patients, carers or members of the public.

For more information or if you would like to present your research at one of our Patient and Public Research Advisory Group meetings please contact Research.PPI@uhcw.nhs.uk.

Training and support for researchers         

The INVOLVE Learning and Development webpage contains information about PPI training, learning and development for researchers. If you would prefer to attend a PPI training course please contact Research.PPI@uhcw.nhs.uk for availability.

To find out about the training and support available for patients please click here.

Other useful documents

The National Cancer Research Institute have developed guidance for writing a good lay summary which can be found here.

INVOLVE, the HRA and NHS R&D Forum have produced a 'Public Co-Applicants in Research – guidance on roles and responsibilities' aimed at both researchers and public co-applicants.