Mark Pawsey MP visits University Hospital to learn more about clinical service for rare lung condition

Mark Pawsey, MP for Rugby, visited University Hospital in Left to Right: Karen O’Hara (Patient and Chair of the patient support group, Alpha-1 Alliance UK), Michael Bartlett (Patient), Susan Townsend (Ward Sister), Robert Dore (Patient), Dr David Parr (Consultant Respiratory Physician), Mark Pawsey MP and Dr Beatriz Lara (Consultant Respiratory Physician)Coventry earlier this week to find out more about UHCW’s clinic to treat patients with a rare lung condition.

On Tuesday, August 23, Mark met with patients with alpha-1-antitrypsin deficiency (AATD), a lung and liver condition which is caused by an abnormality in one of the body’s protective proteins.

This can lead to a particularly severe form of emphysema, as well as other problems, such as cirrhosis of the liver.

University Hospitals Coventry and Warwickshire (UHCW) NHS Trust is a leading centre for treating patients with AATD, and during his visit, Mark also talked to the doctors and nurses involved in running the service.

In 2015, consultants Dr David Parr and Dr Beatriz Lara established a new clinic at University Hospital for patients from across Coventry and Warwickshire and beyond. At this clinic, patients have access to a comprehensive team of experts so that all aspects of their condition can be addressed and they have the time to discuss what matters to them. This is particularly important if they have had to travel long distances to visit the hospital.

Mark Pawsey MP said:
“This meeting was a good opportunity to discuss with Dr Parr and patients the progress that has been made on treatments for. Alpha-1 Antitrypsin deficiency.

“I first had my attention drawn to Alpha-1 Antitrypsin Deficiency by one of my constituents and I have taken an interest in the condition, including arranging a meeting with Dr Parr and the Health Secretary, Jeremy Hunt, during the last Parliament to raise his awareness of the Alpha-1 and how it can be treated. I hope that we can continue to build on the progress that has been made.”

Dr David Parr, Consultant Respiratory Physician, said:
“Mark is already known as a champion of the cause for patients with AATD and we’re very grateful that he took time to visit us to learn more about patients’ experiences and our rapidly developing service.

“We’ve had great feedback from our patients, some of whom travel from far afield, and it is clear that we are providing the kind of comprehensive clinical care that they have been seeking for many years.

“At the meeting, we told Mark how our team is made up of specialists from various departments who can give advice and treatment to both adults and children. We also discussed how important it is that patients can choose whether to join research studies at UHCW to look at new forms of treatment.”



Picture caption (L-R): Karen O’Hara (Patient and Chair of the Alpha-1 UK Support Group), Michael Bartlett (Patient), Susan Townsend (Ward Sister), Robert Dore (Patient), Dr David Parr (Consultant Respiratory Physician), Mark Pawsey MP and Dr Beatriz Lara (Consultant Respiratory Physician)