At UHCW we have a multidisciplinary team of sarcoidosis doctors who offer help in treatment. We work together to develop a comprehensive treatment plan to control symptoms and protect your overall health.

The sarcoidosis team at the UHCW also run a regional MDT to discuss sarcoidosis patients across the region.

Sarcoidosis is a multisystem disease characterized by the growth of tiny collections of inflammatory cells (granulomas) in any part of your body, but most commonly the lungs and lymph nodes. It can also affect the eyes, skin, nervous system, heart, bones, joints and almost any other organ in the body.

Some research suggests infectious agents, chemicals, dust and a potential abnormal reaction to the body's own proteins (self-proteins) could be responsible for the formation of granulomas in people who are genetically predisposed. Sarcoidosis can be difficult to diagnose because the disease often produces few signs and symptoms in its early stages.

When symptoms do occur, they may mimic those of other disorders. It should be considered in young or middle aged adults who develop cough, shortness of breath or other symptoms such as unexplained fever, weight loss and fatigue. In some cases, sarcoidosis goes away on its own. However, sarcoidosis may last for years and cause organ damage.

There is no cure for sarcoidosis, but in many cases it goes away on its own. You may not even need treatment if you have no or only mild symptoms. The severity and extent of your condition will determine whether and what type of treatment is needed.

The optimal treatment for sarcoidosis is unclear but steroids are the main therapy for those who are significantly affected. Patients who do not respond to steroids require medications that suppress the immune system. Your doctor will monitor you closely to see if your sarcoidosis is getting better or worse and will adapt treatment accordingly

 Because the disease can affect so many organ systems, you may work with different doctors who specialize in the treatment of the lungs, heart, brain, kidneys, liver, eyes, and skin. Depending on your symptoms or complications, other treatments may be recommended. For example, you may have physical therapy to reduce fatigue and improve muscle strength, pulmonary rehabilitation to decrease respiratory symptoms, or an implanted cardiac pacemaker or defibrillator for heart arrhythmias.

 

If you are a health professional and have any questions about the condition or the referral process, please email Mia.Hancocks@uhcw.nhs.uk or call 02476 965906.