Sickle Cell & Thalassaemia Service

The service aim is to offer high quality care, taking into account our patients’ physical, social, psychological and spiritual needs. We aim to promote our patients’ health and wellbeing and to help them lead independent lives with improved health. We can also advise patients who are planning a family. Cultural and ethical beliefs and confidentiality are respected at all times. Our staff are supported with specialist training, and in their continuous professional and career development.

Sickle cell disease and thalassaemia are the names we give to a group of related genetic conditions that affect the production of haemoglobin, this is the substance in our red blood cells that carriers oxygen around the body. They may also be referred to as “Haemoglobinopathies”.

Our service users: - The majority of our patients live in Coventry, however UHCW also provides some specialist services for patients from across Warwickshire.

Where are we?
We are based on Ward 34 Third Floor Reception (West Wing), University Hospital, Clifford Bridge Road, Coventry. CV2 2DX

Referrals:
Patients are usually referred to our service by GPs, the New Born Screening Programme, and other health professionals.

If you are living in the catchment area and would like to be referred to the service, please ask your GPs or health professionals. Self referrals can also be made in urgent circumstances by contacting the Haematology Department.

Contact Details
Consultant Haematologist (Adult) - Secretary: 024 7696 5539
Consultant Paediatrician - Secretary: 024 7696 7234
Service Administrator - 024 7696 5549
Psychology Service - 024 7696 5542 Tuesday- Friday 8.30am - 2.30pm
Blood taking service (arranged appointments) on Ward 34 outpatients

Contact the Sickle Cell Specialist Nurses
Reception: Administrator Office: 024 7696 5549
In hours: 8.30am - 4.30pm (Monday - Friday)
You can also contact the nurses via Switchboard: 024 7696 4000 and ask to bleep
Children: Bleep 4566
Adults: Bleep 4565

Out of hours: 4.30pm - 8.30am (Monday - Friday)
Weekends and Bank holidays Contact Ward 34: 024 7696 5386 or 024 7696 5390
For children contact the designated ward appropriate for your child (see below).

Emergency service: If you or your child has a sickle cell crisis or feeling unwell and you are unable to resolve the problem at home, go to the hospital emergency department and let the staff know that you have Sickle Cell or Thalassaemia disease. The staff in the emergency department will contact the on call haematologist. The specialist team will also be notified by our alert system. Please bring with your personalised care plan (if you have one) to assist in guiding treatment.

Day Unit: This service is mainly available for blood transfusion / exchange service.
Children Day Unit - Situated in the Children Unit, Ward 16, 1st floor (West Wing)
Tel: 024 7696 7271. Open 9am – 6pm (this can be extended depending on need)
Adult Day Unit - Situated on Ward 34, 3rd floor.
Tel: 024 7696 5491 / 5490 open Monday – Friday 8am– 5pm (there is a transfusion Saturday once a month)

DESIGNATED WARDS: 24hr access. Open visiting with protected meal times.
For children: All located on the 1st floor Children’s Unit, West Wing.
Age 0- 2years old – Ward 15 contact number 024 7696 4004 / 6595
Age 3-12 years old - Ward 16 contact number 024 7696 6589 / 7224
Age 13-16 years old – Ward 14 contact number 024 7696 7437/ 7433

Adults – located on the 3rd floor, Ward 34 contact number 024 7696 5390

Service Provision:
• Specialist Consultant and nurses.
• Co-ordination of care for people affected by Sickle Cell & Thalassaemia
• Genetic Carrier Clinics, - screening and counselling in: Antenatal and partner carrier (Monday 09.00-12.00hrs.) Neonatal/ Children carrier clinic (Thursday 13.00-16.00hrs), general carrier clinic. (Wednesday 14.15 – 15.30hrs)
• Clinics providing specialist medical reviews for affected children (2nd Wednesday of the month) and adults ( Friday 13.00-16.30hrs)
• Joint children’s clinic with paediatric haematology specialist (from Birmingham Children’s Hospital)
• Transcranial Doppler screening joint clinics (Children)
• Designated wards – including age appropriate service with link staff
• Day Unit Care
• Specialist psychology service
• Link nurses on the wards
• Training and Education – to service users, nursing and medical staff and other professional.
• A resource service users, health professional and public
• Support parents and schools with developing care plans
• Home visits where appropriate
• Link with support group
• Phlebotomy service
• Auditing and research. Including the support of the National Haemoglobinopathy Register
• Accident and Emergency Department
• Referrals and links with specialist services, including Endocrinology, Cardiology, Renal, Urology, Orthopaedic, and Obstetric Specialists
• Signposting to welfare and other social services

Our teams work in close affiliation with the following organisations:
Birmingham Children’s Hospital
, A Paediatric Haematologist attends our joint clinic at UHCW every 3-6 months
South Warwickshire Foundation Trust (SWFT)
George Eliot Hospital NHS Trust (GEH)

Support Group: Coventry Carers’ Centre, 3 City Arcade, Coventry, CV1 3HX Please contact Elsa on: 024 7663 2972

Other useful services:
The Sickle Cell Society
020 8961 7795
020 8961 8346
info@sicklecellsociety.org

The UK Thalassaemia Society
020 8882 0011
http://ukts.org/

NHS Sickle & Thalassaemia Screening Programme
http://sct.screening.nhs.uk/

Benefit Services: Coventry 024 7683 1800
http://www.coventry.gov.uk/housingbenefitsadvicecentre  
Spire House, New Union Street, Coventry CV1 2PW
 


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